There is much to write about. We bought a house. I had my first treatment of Skronk (name selected by the highly scientific close-eyes-and-point method). I feel like shit, and I'm not supposed to. I got an email from someone who thought I died. And to top it all off, a possible miracle occurred.
But, like I said, I feel like shit. So here is a generic pre-fab post for you until I get some energy to write about something substantive. And make sure to tell me your own Top Three!
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The Top Three Things I Really Fucking Hate about Cancer
Number Three: Body Image Issues
I don't care who you are, you care about what you look like. Especially if you are a woman. Especially if you are emotionally vulnerable due to a traumatic event, like being diagnosed with cancer. Yes, what really matters is on the inside blah blah blah, but let's face it, we care about our appearance.
When dealing with cancer, there are many things that affect how you look. Of course the most noticeable is the loss of hair. I was never one to care much about my hair. My dad always teased me, saying every time he saw me my hair was different. It was always short, because I couldn't stand to not cut it all the time. I dyed it every color imaginable (except RED - no red for me!). And so it may have appeared to some (and even myself) that I just didn't care about my hair. But of course the truth is that I cared about it so much that I always wanted something fresh and new. I loved changing my hair to suit my mood, to express my personality.
When I shaved my head, I was completely numb. I did the whole head without looking in the mirror once to check my progress. It didn't feel that bad, although I did notice the huge pile of hair on the bathroom floor. When I finally looked at myself, I was totally horrified. I thought, there is no one uglier than me right now.
But after a while, I just got used to it. Sometimes I was a little surprised to see how gaunt and pale I was in the morning, but it bothered me less and less each day. Then, cancer dealt me an even crueler blow. Right when I had started accepting myself as a bandanna-wearing waif, I stopped chemo. My cheeks filled back out, and I looked like a chubby toddler. My hair started growing back, but I quickly realized there is just nothing to be done with a 1/2 centimeter of hair that sticks straight up, no matter how much industrial-strength adhesive is applied.
I am still not happy with how I look. It pains me, because I used to be quite confident and even proud of my appearance. I don't know if I will ever have the same level of confidence again. I feel really cheated to have that taken away from me.
Number Two: Problem Poop
Okay, I wasn't going to mention this, because I normally do not talk about bowel movements EVER, but I can't deny that this is a huge frustration. Between chemo, a diagnosis of Crohn's disease, and a bowel obstruction, things could be a lot better for me in the poop department. To say the least.
Not only is it a constant source of pain and irritation, but I also feel like I can't talk to anybody about it. Although some people can talk openly about these issues with family or friends without judgment, I definitely can't. For one, I am a prude. For two, everybody else around me is a prude, too. Constipation, diarrhea, and cramps fall squarely under the category of Things We Do Not Discuss Under Any Circumstances, Ever.
All through my treatments I have fluctuated constantly between "Oh my god I can feel the shit BACKING UP inside of me like some kind of intestinal traffic jam!" and "Holy Christ make it stop, it burns!" And let me just tell you, there is nothing better to get you and your SO in the mood for love. Try the new couple's game, "Honey, Guess How Many Feet of My Bowel Were Filled with Liquid Diarrhea before Surgery!" (And if you liked that, you'll love "Honey, Can You Look on My Stomach to See If I Have a Colostomy Bag?" NEW! from Mattel) It is humiliating and nauseating to discuss these problems with Boyfriend.
The only thing worse than being in pain, is being ashamed to ask for help with it. And that is exactly the situation I am in with my bowel trouble.
The Number One, All-Time Thing I Really Fucking Hate: Pills. Goddamn Pills.
Everyone has a phobia, right? Mine is swallowing pills, always has been. Just thinking about it makes me ill. I have to stare at the pills for a good ten minutes trying to psyche myself up for it. Then as soon as I get the pill in my mouth, these images of me choking on it and getting sick flash through my mind. Which, of course, cause me to choke on it and get sick.
I think it might go back to when I was camping a long time ago. I put an Advil in my mouth, thinking I was right next to the water fountain. I wasn't. It started to dissolve on my tongue, which is NOT PLEASANT, and I started to gag, so I had to drink the hot water for coffee to get the pill down. But by that time, it had made me so sick, that I threw up the acidic, half-dissolved-on-my-tongue pill and the hot water (which was, as you might imagine, still quite hot on the trip back up). Oh my god. I can't think about that anymore.
And it's not like, every so often I have to take a pill or two. I take roughly 10-15 pills a day. A day!! So I have to go through the repressed memory, the choking, and the resulting anxiety attack over and over again every single day.
Not to mention that the worst isn't over once the pill is swallowed. A lot of the pills have a lot of side effects, especially antibiotics, which give me terrible nausea and constitute the majority of the pills I take every day. Over the past year, I have probably swallowed half my body weight in antibiotics alone. And I will have to take them for the foreseeable future, whether I have any infections or not.
[ For the know-it-all medically-inclined reader screaming "BUT RAE! ANTIBIOTIC RESISTANCE!" at the computer screen, calm down. I am not a breeding ground for smallpox and other oft-forgotten diseases of lore. My body simply does not have the capabilities to fend off the normal bacteria in my body after my high-dose chemotherapy. Like when a girl douches, and takes away the resistance to the yeast down there, and she gets a yeast infection. The high-dose was like a full-body douche* that took away my ability to fight off normally-present bacteria for a long, long time. So, antibiotics are the course, infection or no infection. ]
Taking all these damn pills is exhausting, physically and mentally, for me. They** always say you have to face your fears to cure them. But I face mine a million times a day, and I am still afraid of pills. Having to take them just reminds me over and over how scared I am, and certainly doesn't help to "conquer the fear." It just sucks. SUCKS.
So there you have my list. [Honorable Mentions: Hearing impairment, shingles, and loss of independence]
I'm sure if you asked 100 cancer patients to make their own, you would have 100 different lists on your hands. For those of you who have had cancer/an illness/a traumatic life event/anything that falls under the "Shitty Things" category, what are your Top Three?
* I can't believe I said that. Ewww, fucking ewwww. Excuse me, I have to go douche my mouth now.
** Whoever They are.